About the Burn Injury Model System
The Boston-Harvard Burn Injury Model System (BHBIMS) is one of four Burn Model Systems funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) and dedicated to improving the lives of burn survivors. BHBIMS strives to provide the highest level of comprehensive burn care, beginning at the time of injury and extending through rehabilitation and eventual re-entry into community life. BHBIMS is also committed to conducting rigorous research, with a specific focus on the long-term functional and psychosocial outcomes of burn injury. This research serves as a platform for knowledge dissemination and education.
BHBIMS is a collaboration of Spaulding Rehabilitation Hospital, Massachusetts General Hospital, Shriners Hospitals for Children – Boston, Brigham and Women’s Hospital, Harvard Medical School, and the Boston University School of Public Health.
What is a Model System?
Model Systems are networks of hospitals and research institutions across the United States that focus on tracking and improving outcomes of people with one of three types of injuries: burn injury, spinal cord injury, and traumatic brain injury. The Model Systems are funded by the NIDILRR, a component of the Administration for Community Living (ACL) and the U.S. Department of Health and Human Services (HHS). The Model Systems work to:
- Complete research on selected conditions (burns, spinal cord injuries, and traumatic brain injuries)
- Disseminate research findings to the public
- Educate patients and families
- Uphold excellence in clinical care
Jeffrey Schneider, MD - Program Director
Dr. Schneider is the Medical Director of Burn, Trauma, & Orthopedic Rehabilitation at Spaulding Rehabilitation Hospital, Division Chief of Comprehensive Rehabilitation and Associate Chair of Physical Medicine & Rehabilitation at Harvard Medical School, and Director of the Rehabilitation Outcomes Group at Spaulding Rehabilitation Hospital. His research focus is on long term effects of burn injury. He has published sentinel manuscripts in the field of burn rehabilitation, including works detailing the barriers to return to work and has authored chapters on burn rehabilitation in authoritative textbooks in the field. As the Program Director of the Boston-Harvard Burn Injury Model System, Dr. Schneider oversees all study activities at Spaulding Rehabilitation Hospital and facilitates all recruitment efforts, data collection, analysis, interpretation of data, manuscript development, and dissemination activities.
Colleen M. Ryan, MD - Director of Clinical Care
Dr. Ryan is a general surgeon with thirty years of clinical experience caring for adults and children following burn injuries. She is the Director of Clinical Care at the Boston-Harvard Burn Injury Model System as well as a Professor of Surgery at Harvard Medical School. In addition to her rich clinical experience, Dr. Ryan is a highly cited author of over 200 scientific publications. Dr. Ryan’s research expertise includes mortality prediction following burns (Ryan Score), patient reported outcome metrics such as the Life Impact Burn Recovery Evaluation (LIBRE) measuring social participation following burn injury, and the age-based Shriners Hospitals for Children/American Burn Association Burn Outcome Questionnaires (BOQs). She has multiple publications addressing burn recovery including social reintegration, employment and pain following burn injury. She has published research into innovative approaches to the treatment of infections following burns and trauma. Dr. Ryan is active in the American Burn Association and leads the Organization and Delivery of Burn Care Committee, developing guidelines for care and fostering national and international efforts for burn disaster preparedness.
Ross Zafonte, DO - Administrative Director
Dr. Ross D. Zafonte is an internationally recognized expert in rehabilitation after catastrophic injury and is a Co-PI of the Spaulding Hospital-New England Regional Spinal Cord Injury Model System and the Spaulding-Harvard Traumatic Brain Injury Model System. He serves as the chief of Physical Medicine and Rehabilitation at Massachusetts General Hospital, Brigham and Women’s Hospital, as well as Senior Vice President Medical Affairs Research and Education at Spaulding Rehabilitation Network. He has published over 300 peer review journal articles, abstracts and book chapters and has received 5 awards for his work in the healthcare community.
Lewis E. Kazis, ScD - Director of Research
Dr. Kazis is a Professor of Health Policy and Management and Director of the Center for the Assessment of Pharmaceutical Practices (CAPP) at the Boston University School of Public Health. He received his doctoral degree from Harvard University School of Public Health in 1980. For over 25 years, he has been involved in the study of patient reported outcomes (PROs) and quality of life assessments and is a recognized national leader in PROs. Dr. Kazis conducts research projects for the Centers for Disease control (CDC) and Centers for Medicare and Medicaid (CMS) in the areas of quality of care and patient reported outcomes. He has also collaborated with Massachusetts General Hospital and Shriner’s Hospitals for Children on the evaluation and development of the Burn Outcomes Questionnaire and the Young Adult Burn Outcomes Questionnaire.
Diana Tenney - Co-Director of Dissemination
In 2010, Diana sustained a third degree burn injury to 91% of her body. Since her injury, Diana has devoted her time to supporting and advocating for the burn survivor community at the local and national levels. She is a certified Phoenix Survivors Offering Assistance in Recovery Peer Supporter and has completed over 120 in-person peer visits at MGH, Brigham & Women’s Hospital, Spaulding Rehabilitation Hospital, and Shriners Hospital for Children-Boston. She co-founded the Diana Tenney Burn Research Fund at MGH to support life-saving burn care research and outreach training programs for emergency teams in the New England Area. Currently, she serves on the Burn Survivors of New England Board of Directors and the Massage and Burn Scar Therapy Burn Foundation Board.
Mary Slavin, PhD - Co-Director of Dissemination
Dr. Slavin is a physical therapist with more than 30 years of experience in the rehabilitation field as a clinician, educator and researcher. Her interests include promoting evidence-based practice in rehabilitation and use of appropriate measures to assess rehabilitation outcomes. She has contributed significantly to two computer adaptive tests (CAT): the Activity Measure for Post-Acute Care (AM-PAC) and the Spinal Cord Injury Functional Index (SCI-FI). Dr. Slavin is currently the Director of Education and Dissemination at the Health and Disability Research Institute at the Boston University School of Public Health.
Lauren Shepler - Research Project Manager
Huan Deng - Postdoctoral Research Fellow
Kaitlyn Chacon - Research Coordinator
Edward Santos - Research Coordinator
Khushbu Patel - Senior Clinical Research Coordinator
Madeleine McGwin - Clinical Research Coordinator
Pengsheng Ni, MD - Statistician
Brian Kelter - Research Coordinator
Callie Abouzeid - Research Coordinator
Kate Surette - Clinical Research Coordinator
Sarah Findeisen - Clinical Research Coordinator
Deborah Nadler, MD
Spaulding Rehabilitation Hospital
Spaulding Rehabilitation Hospital offers expert burn care for the full continuum of needs – from inpatient rehabilitation to outpatient follow-up care. At every stage, their goal is to help patients maximize their functional independence, find emotional strength and confidence, and successfully transition back to home, work and the community. Families play an integral role in this process. During hospital stays, families are taught practical skills and therapeutic techniques to assist in the patient’s care after discharge.
The Massachusetts General Hospital Burn Service
The Massachusetts General Sumner M. Redstone Burn Center is one of the largest adult burn centers in the Northeast, treating hundreds of patients each year. As an American Burn Association verified burn center, they offer leading-edge therapies for acute thermal injuries, as well as innovative reconstructive procedures and psychiatry services.
Shriners Hospital for Children - Boston
Shriners Hospitals for Children is a highly specialized pediatric surgical hospital located in downtown Boston. It is one of the world’s preeminent hospitals for the treatment of children with burns and the only exclusively pediatric, verified burn hospital in New England. Affiliated with Massachusetts General Hospital and verified by the American Burn Association and the American College of Surgeons, Shriners Hospitals for Children — Boston meets all of the demanding standards for organizational structure, personnel qualifications, facilities resources and medical care services to ensure the best possible outcomes for children.
Brigham and Women's Hospital
Brigham and Women’s Hospital is verified as a Burn Center by the American Burn Association and American College of Surgeons through July 2018. The Burn Center, which is one of few burn centers nationwide led by plastic surgeons, provides treatment and follow-up for patients with minor to severe burns, as well as those who have suffered from burn injury and seek a better functional and aesthetic outcome. Burn and plastic surgeons work closely with a strong, multi-disciplinary team including occupational therapists, physical therapists, dietitians, social workers, and skilled wound care staff.